CCHS Fun Run

CCHS Fun Run

CCHS Fun Run (5K)
April 18, 2026
8 am - until

$25

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This 5K Run is in honor of Grayson Mills the precious 8-month-old son of Tylor and Lindsay Mills. Though his life began with an unexpected diagnosis of Congenital Central Hypoventilation Syndrome (CCHS), Grayson meets each day with a joyful smile and a gentle spirit that touches everyone who meets him. His journey hasn’t been easy, but his strength shines through in every milestone he reaches. Supported by the endless love of his parents and family, Grayson continues to grow and thrive, reminding us all of the power of hope, perseverance, and unconditional love.
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Congenital Central Hypoventilation Syndrome (CCHS)
is an extremely rare disorder that affects the body’s ability to control basic functions, such as breathing during sleep. There are no available treatments to date beyond mechanical ventilation. The CCHS Network is casting a light on this orphan disease to ensure a brighter future for our small but determined community.